Living With Cancer
Advocacy
Funding and Activities
Direct Patient Support Projects
- Developed information to help guide patients in making informed treatment decisions
- Supported patient navigator and support group
- Developed patient information for clinical trials, new treatments and expanded access programs
Expanded Access Programs
- Worked with industry, advocates, NCI and FDA to plan and implement successful EAPs and protocols
- Collaborated with FDA on policy issues related to EAP and streamlining the approval process
- Continued to press industry for expanded access programs in appropriate circumstances
Integrity of Research
- Initiated and coordinated advocacy response to attacks on clinical trials by the Washington Legal Foundation
- Generated grassroot support for full funding of NCI Bypass Budget through One Voice Against Cancer
Advocate Growth and Development
- Presented on regulatory, research and legislative issues in a variety of forums including the Colon Cancer Alliance annual conference and the Clinical Trials Summit
- Launched www.CancerActionNow.org to provide focused information on regulatory issues to patients and advocates
- Developed training and outreach opportunities for cancer patient advocates, including
- collaborations with the FDA for training patient consultants
- advocate travel to scientific meetings such as ASCO and SPORE
